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Imagine
living with skin so fragile,
that every single thing you did in
life, could cause it to blister or
slough off. Or skin so extremely
fragile that it blisters and breaks
down for no apparent reason at all.
This is a reality for me and many
others who live with a rare group of
genetic skin defects called
Epidermolysis Bullosa (or EB for short).
I created this website for two reasons:
One, as an informative helpful
resource for EB patients, parents, and
those who are involved with EB on a
daily basis. And two, to inform the public,
doctors, and dermatologist about
Epidermolysis Bullosa. |
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